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Rank: Advanced Member
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Hello Everyone,Just wondered if any of you out there could give some tips on how to deal with the terrible night sweats I'm having at the moment. I've read that they are linked to r.a. and I just have to live with them but at the moment they are worse than ever. I am waking up completely soaked from head to toe! Any ideas please?! Many thanks...... Allison x
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Allison,
I haven't any experience of this but it sounds awful. Hopefully someone will have some advice for you.
x x
Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry can't help Allison but it's a regular topic on the forum so I'm sure someone will offer advice. I know a lady who confesses that she is hot in bed LOL.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hi Alison,
I began a thread on this when the new forum was first set up, but I am not sure how one accesses old threads!
Night sweats are one of the less well known symptoms of RA I believe as when I first encountered them my then rheumy told me it had nothing to do with RA!
However that is not correct, they are very much a symptom and quite often our body temperature will be always higher than normal. It can affect one more if they are taking steroids or having jabs of steroid too.
I become very hot at night , ie soaked down the front, and it is most upsetting. The only thing which has helped a little is keeping the window open all night long.
It is especially bad in a flare or if a couple of joints are very swollen and painful.
Much love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Alison,
I bought a mattress topper, Silent Night "Ambience".
It's made of material that they use for space suits or something and helps to keep the temperature constant.
Cost about £50 but well worth it for more comfortable nights!
Doreen xx
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Rank: Advanced Member
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Towel and wet wipes by the bed. The chill follows the sweat so having a quilt to pull up helps too. Spare night clothes to quickly change in to. It is a nightmare but at least we do know what you are going through. No chance of the menapause being involved is there? I would also mention it to the GP stressing just how bad it is. Sending sympathy based on a shared experience. At present on 60mg Prednislone so suffering greatly!
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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60mg of steroid Eleanor You poor lady Much much love. How long do you have to stay up there- I hated it that high- you feel it all the time up there, but for short bursts I know I have needed it.
The heat is a night mare for me at night too. No I am not menopausal but it is partly the RA and lack of temperature regulation and partly the stupid steroids and Addisons.
I have a cool mattress topper- it was pricey but I have found it helpful. I have a bed with some of that space foam in it and this doesnt help as it radiates the heat.
Also I have a fan and one on the ceiling.
Jenni x
how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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PS also worth having a Diabetes and Hormones check ask the GPhow to be a velvet bulldoser
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For a long time Jenni. Not in a good place since before Christmas but is the Temporal Arteritis not the RA. I am buzzing and sweating for the whole of Britain, never mind the shakes!
Take care,
Eleanor x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Many prayers, Eleanor, I am always thinking of you...
Love,
Amanda
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Rank: Advanced Member
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Location: Thornton Cleveleys
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prioryc wrote:... Not in a good place since before Christmas but is the Temporal Arteritis not the RA... Eleanor, so very sorry to hear this you must be in a lot of discomfort; I appreciate this is a wild understatement but words fail me. My rheumy ran some tests for TA last year as my ESR was ridiculously high for 6 months and my joints were fine at the time! I hadn't even heard of it up to that point. I had been experiencing some weakness and headaches and loads of stress and she thought it might be TA or Vasculitis. All the tests and scans were clear then oddly the ESR dropped dramatically, the symptoms disappeared and to this day we're all baffled! I did quite a bit of reading up on both TA and Vasculitis so realise how difficult it must be for you. That huge dose of Prednisolone, although necessary, must make life a challenge. I do hope you get some relief from the awful symptoms soon and you start to feel better. Wish you were nearer I would come and visit (and give you a quick trim  ). I thought I had your email somewhere but I haven't so I can't get in touch! Am thinking of you my lovely friend. Take care Eleanor, Lyn xx My apologies for hijacking the thread  , sorry!
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Rank: Advanced Member Groups: Registered
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Hi Lyn, I hope Eleanor doesn't mind me saying that she has been incredibly brave throughout since her TA made a return visit! She has suffered in silence and tried to carry on as normal , even managing to stay on at work and hand over in preparation for her retirement. As you know from your research, it is a very painful and debilitating condition and I think she deserves a medal for the way she's coped with it. She'll be furious with me now!  Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hear, Hear - I echo everything Doreen has said! Kathleen x
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Rank: Advanced Member
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Hi
I agree Eleanor is one brave lady you never hear her complain
take great care Eleanor
Mary L
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Hi me again I forgot the reason I came onto this thread for (must be the drugs) I have had the night sweats for 2 years but I am on the change (in the winter in the bed room we had on heating on and I had a fan blowing into my face Richard thought he was training for the Antarctic ) I just love changing my night dress and sheets every night  Mary L
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Rank: Advanced Member
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Thanks for all your replies and suggestions. I've been tested for diabetes and menopause as I turned 40 last year,but they both came back clear. 
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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I couldn't agree more, Eleanor *is* a very special lady!
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I found this an interesting thread because - as I've said elsewhere - since developing RA I've felt the cold much more than before, so I generally have the heating turned up and still sit with a blanket around me. But ... just lately I've had to throw off the blanket, turn the heating off and undo buttons (Jeff thinks it's his birthday  boy, was he ever wrong!) This only lasts for a while, and does occur at night as well, but it hadn't occurred to me that it might be to do with the RA (I'm well past the menopause). Eleanor, what you're going through sounds awful, you have my sympathies. Anthea x
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